Sydney Alexis

(I'm so behind here, thanks to a complete cable/internet outage at home. I'm planning to catch up in the next couple of days.)

Post 3 of 31 for Pregnancy and Infant Loss Awareness month

How very softly

you tiptoed into my world.

Almost silently;

Only a moment you stayed.

But what an imprint

Your footprints have left

On our hearts.

--Author Unknown

We didn't plan on having another baby. My pregnancy with Hailey was awful, with so many complications--high blood pressure, pre-eclampsia, HELLP Syndrome, Gestational Diabetes, pre-term labor, and enough fear and worry to age me several years in the seven or so months I was pregnant with her. Hailey was delivered at 33 weeks on the dot, and about 8 hours after she was born and whisked away to the NICU, my perinatologist came into my room and told me I should consider permanent birth control because another pregnancy would likely have a tragic outcome. Of course, she was thinking of the pre-eclampsia and HELLP Syndrome, and neither of those things contributed to losing Sydney.

But she was coming and after some adjustment time, we were happy. My pregnancy was smooth, at least up until the day I ended up in the hospital. I never imagined that I'd ever hear those words--we have to induce, the baby isn't viable, there's nothing we can do for her, you'll die if you don't deliver soon. It was my worst nightmare. I didn't know how I'd survive losing one of my children. I didn't know how I'd ever forgive myself for signing the papers to allow the induction, essentially signing her life away before it even began.

My pregnancy with Sydney was different than the others. At about 12 weeks, if I laid in bed very still at night or in the morning, I could feel her fluttering around. Eric felt her kicking at about 19 weeks, long before he felt any of the other kids too. When I was in labor with her, she positioned herself very high up in my uterus, as if to say, I don't want to go and you can't make me.

February 10, 2009, at 4:30 am, that beautiful little girl came into this world far too soon. I was so scared to see her, to have this monumental responsibility of saying hello and goodbye and ensuring that whatever time she had on Earth was full of love. When I pushed and she was born, I was looking at Eric. His face was a mixture of disbelief, fear, but most of all, love. I asked him, Is she alive? and he nodded. I want to hold her, I want my baby, please, let me see my baby, I pleaded. The doctor cut her cord and she was placed on my chest.

I've never seen such a tiny baby. She was so completely perfect. She gasped for breath and Eric said she squeaked a couple of times, but I don't remember. I was crying so hard and telling her how much I loved her and that I was sorry. So very sorry that I hadn't been able to do better for her. Eric quickly held her for a moment, and then my mother in law held her for a moment. As she was passed back to me, I opened my gown and held her skin to skin on my chest. She settled in peacefully, as if she knew her place was right there in my arms. At one point, while I was caressing her and examining every inch of her, I rubbed her upper arm, near her shoulder. She snapped her little arm away from me, as if to say, stop it already, mommy. She would've been a stinker just like her sisters. She also grasped our fingers in her hands, moved her legs around quite a bit, and moved her arms around some more. It was amazing to see how developed and coordinated she was for being so early.

They told us Sydney likely wouldn't survive the delivery. If she did, we'd have only a few minutes with her. She lived for just over two hours. I thank God everyday that He gave us that gift. I am so grateful I was able to have those memories of her. I have no regrets for those two hours of her life. I tried my best to give her a lifetime of love in those two hours. And I did. I am confident in that. She knew my touch and my arms, she heard my heartbeat under her head just as she'd heard it inside of me for the previous 20 weeks. It comforts me to know that she went from my arms directly to Heaven.

On Sydney's first birthday, I resolved to make that day about her life. It wasn't about her death. Her birthday has been a hard day both years, but we celebrate the fact that, on that day, she lived. We want her to live on. Through us, she does and she will as long as we do.

October is Pregnancy and Infant Loss Awareness Month

"Awareness breeds compassion and support. Please don't judge grieving parents; please don't expect them to get over it or move on. Don't tell them how to grieve or criticize their grief. Don't expect them to hide their grief to please others because it is too hard for you to deal with. If it is too hard for YOU to deal with, imagine how we, the parents, feel." ~Me

My goal this month is to blog everyday, about a different aspect of pregnancy and infant loss, my losses, and how they have shaped who I am.

When these months come and pass and people talk about breast cancer awareness, childhood cancer awareness, autism awareness, pregnancy and infant loss awareness, we often think, why do we need awareness? We're aware of these things. Yes, we are aware they are out there, but are we really aware? I love the Faces of Loss I Am The Face campaign because it shows us the real people that have experienced pregnancy and/or infant loss.

I've been an "awareness" mom for many years now, with a child on the Autism spectrum and a parent of preemies. Sure, we all know what Autism is, but how many of us see a child misbehaving in a grocery store and think, he needs some discipline? The true issue may be that he has Autism and the lights, sounds, and other sensory input in a grocery store are too much for him, or his mom had to make a quick run and he was torn away from his 2:30 Thomas the Tank Engine video. No, we just think, My child would never act like that, his mother needs to swat him on the butt.

I digress. There are so many women out there who have lost a baby and never spoken of it. Until a few months ago, I had no idea that a very dear friend had lost a baby almost a decade ago. Our babies are like this dirty little secret that society wants to sweep under the rug and pretend they didn't exist. After all, a dead baby is far too tragic and sad to speak of, right? We have family members who don't speak of Sydney, who refuse to even acknowledge she ever existed. As my quote above says, if it hurts you to talk about her, how do you think *I* feel? She's my daughter and she's gone. I will carry that pain with me for the rest of my life. I've learned how to live with my grief, how to give into it, how to co-exist with it. My grief has shaped who I am. I used to say it changed me, but really, we're all ever changing and evolving. It is shaping who I am today. Yes, that means I'm some times angry and bitter. Wouldn't you be if one of your children was taken from you?

Awareness is about more than knowing something exists. We need compassion, understanding, and support. We need people to freely speak of our babies and to feel that they can tell their own stories. Grieving parents need acknowledgment and do not need to be told to move on, get over it, appreciate the children they have, or just have another baby. Nobody would dream of saying such things to someone who lost their older child or to someone with cancer. Why is it okay to say them to baby loss parents? Somehow, people believe that our tragedy is less than other losses. I was once told, "People believe the grieving period is in proportion to the size of the corpse."

I want people to be aware of Sydney. She was, in a word, amazing. I find it hard to describe the two living hours I had with her, but to put it simply, an angel was in our midst. She fought so hard for those two hours, to stay, to live. It is my greatest desire that Sydney's spirit lives on, through us and through others who have been inspired by her.

One year ago...

I was 15 weeks pregnant. At 13 weeks, a cervical ultrasound showed that my cervix was a little shorter than my OB, Dr. S, liked and with my history, he finally agreed to my desire for a cerclage. I'd hoped to have it placed by 14 weeks, but by the time I got on the schedule, I was 15 weeks and 2 days pregnant.

I had the surgery at the same hospital where I delivered Sydney. I hate that place. It ended up being the hospital where I delivered Kelsey and she spent 9 weeks in the NICU. I'd been feeling okay up to that point, none of the pressure or weird pain that I'd had with Sydney closer to when she was born. I was nervous though. The cerclage isn't without risk to the baby.

The surgery took maybe 20 minutes. I was given the lightest general anesthesia possible so I wasn't awake during the procedure. I was so grateful for that. I remember coming out of anesthesia as soon as they wheeled me out of the operating room. It wasn't like the other surgeries I had where it felt like I woke up as soon as I went to sleep. I could tell some time had passed so I don't know if I started to wake up or if it was just because the anesthesia was so light. When I woke up, Dr. S was gone and nobody told me anything about how it went.

After some delay and confusion, I was finally moved from recovery to my room. Dr. S had decided to keep me overnight and I was put in a room on the antenatal floor. The next day, I would have an ultrasound to check the cerclage placement and my cervical length. When I got to my room, Eric was there waiting for me.

When I was settled in, he told me what happened during the procedure. Immediately after, Dr. S came out to talk to him. Eric said the doctor looked really shaken and when they talked, Eric realized Dr. S was shaken. Dr. S told him that my cervix was very soft and had shortened significantly. He got the stitch placed as high as he could. He was very glad that he did the procedure because if he hadn't, we most likely would've lost the baby. Now we had to hope that my cervix would react favorable to the stitch and hopefully length and become stronger with the reinforcement.

Obviously, we know how the story ended. Our baby girl is here safe and sound. My cervix lengthened quickly. The day after surgery, it was about 3.0 cm. Two weeks later, it was about 4.0 cm and it continued to grow longer. The last check at 28 weeks showed that it was 4.5 cm. Typically, the cervix is around 4.0 cm during pregnancy.

I look back to that day and I thank God I listened to my gut. Once I did the research and realized Sydney's delivery was an exact description of incompetent cervix, I was determined to have a cerclage with my next pregnancy. The doctors weren't so sure I truly had an incompetent cervix because I'd delivered two babies in the third trimester and there was an infection found in the placenta. I know my body well and I was determined to have this done. I was prepared to find another doctor to do the surgery if necessary.

One little stitch, a lot of prayer, and God's grace saved my Kelsey's life. I cannot imagine my life without her and I wish that we'd known all of this so we could've saved her sister too.

Us

The easiest way to start out is with an introduction to us, I suppose. We are the Grangers, a mom and dad in our 30s who have been married forever and have a few kids. That's the quick version. But anybody who knows me, knows I'm never satisfied with the quick version. ;)

I'm Jaime, super mom extraordinaire. Or not. I'm a full-time student with a full-time job and I struggle to balance those two things with being a mom and a wife. I usually feel like there are not enough hours in the day to accomplish all that I want/need to. My kids are the most important people in my life and I am a fierce mama bear when it comes to all four of them. I learned a long time ago that I am their best/only advocate and I will fight for what is best for them. Yes, I am *that* mom. I am very passionate in my beliefs and I'm proud to call myself an extremely liberal feminist. I am pro-choice, support the rights of all people to choose their own lifestyles, extremely pro-breastfeeding, and pro-family. I'm also a Christian. I'm sure you'll hear more about all of that at some point. I had Lap Band surgery in February 2008, lost quite a bit of weight right off, but I've struggled since then. I'm currently trying to get myself back on track and lose the weight I've regained and the rest I need to lose.

Eric is my husband of 12 years. We got married when he was 20 and I was 19. Eric is a very hands-on dad and does everything I do. We're a parenting team, though he's usually the good guy and I have to be the bad guy. Daddy is just too much of a pushover for his cute kids. Eric works in retail and has the kind of schedule that allows him to see the kids off to school in the morning and get home in time to get them off the bus, do homework, cook dinner, and all that.

Christian is our first child and only son. We struggled for almost two years to conceive him and the day he was born changed my life forever. Christian is now 9. He has Asperger's Syndrome, but he is extremely high functioning and simply brilliant. His greatest aspiration is to be a paleontologist. Christian taught me how to fight for what my children need during the three years that it took for us to get a diagnosis for him. Intervention and therapy proved to be incredibly important to Christian, who went from barely saying a handful of words to talking incessantly in a matter of months when he was 3. We celebrate Christian's differences and to us, he is a quirky boy who just sees the world a little differently than most. The view from Christian's head is very colorful and refreshing.

Hailey is our first daughter and just 18 months younger than Christian. After struggling with infertility, Hailey was a surprise for us. My pregnancy with her was extremely difficult, ending with an emergency induction at 33 weeks due to severe pre-eclampsia and HELLP Syndrome. Hailey has been a fighter for her entire life, spending only 12 days in the NICU after her birth. The only lasting issue related to her prematurity has been a speech delay and mild asthma. After Hailey's pregnancy, we were advised to not have any more children, but someone else had other plans.

We found out we were very unexpectedly expecting Sydney in October 2008, the same month we finally scheduled a vasectomy for Eric. Since I was already pregnant, we decided to hold off on having that done when Eric had scheduling issues at work. I had a wonderful pregnancy right up until I ended up in the hospital with a slight bit of bleeding and found out that I was in preterm labor at only 20 weeks pregnant. Sadly, Sydney was born at 20 1/2 weeks, on February 10, 2009, and lived for two hours. Being Sydney's Mommy has changed me forever. I've struggled in every way imaginable with losing her. When I held her for the first time, I held a true piece of heaven and I knew then that she was too perfect and innocent for this world. Losing Sydney shook me to my core and caused me to question every belief I've ever held. I still struggle with guilt, anger, and unending sadness, but in the last 20 months, I've also learned how to celebrate her life and how to carry her memory with me. Sydney is as much a part of our family and a part of me as my living children.

After losing Sydney, I knew that I wanted to have another baby. I needed to fill my womb and my arms again. Nobody could ever replace Sydney, but after experiencing my pregnancy and loving her so much, I knew that I wanted to have another living child to love and raise. On August 1, 2010, at only 31 weeks gestation, our rainbow arrived. Kelsey Grace was born 9 weeks early due to severe pre-eclampsia. She spent a long 64 days in NICU and finally came home the day after her due date. Kelsey is a balm for my soul, a beautiful, perfect baby girl that I feel was handpicked by her sister to help ease our pain. I've come to realize that Sydney's and Kelsey's lives are completely intertwined. Many would say that Kelsey wouldn't be here if Sydney hadn't died, but I say Kelsey wouldn't be here if Sydney hadn't lived.

Finally, we can't forget the furry four legged member of the family, Tigger. Tigger is our 13 year old gray tabby cat. He's getting grumpy in his old age, but we all love him to pieces.