Butterflies and Rainbows

Wednesday, June 29, 2011

Never forget

Tucked away in a box of old papers and pictures is an ultrasound picture from May 2000. It isn't a baby. At least it wasn't yet. It is an ultrasound picture of two follicles I grew that month, one of which fertilized and became our first baby. I found out I was pregnant on May 27, 2000, our second wedding anniversary. It wasn't meant to be, however, and just over a week later, I miscarried. I still think of that baby so often.

Once upon a time, I was infertile and thought I would never have a baby. It's hard to remember that some times, four babies--two planned and two unplanned--later. Getting pregnant was the hard part the first time. Staying pregnant--and healthy--became the challenges in subsequent pregnancies.

When I was 20 and Eric and I had only been married for a year, we decided we wanted to have a baby. Easy enough, right? Wrong! My periods were pretty well nonexistent at that point. My gynecologist at the time told me that I should go on the pill. Uh, I want to get pregnant, not prevent it. As is my nature, I began researching and began to suspect I had Polycystic Ovarian Syndrome. The more I read about it, the more I did NOT want to have it. My boss had just gotten pregnant and told me that I should see her OB/GYN because he was also a fertility specialist. I didn't realize then the impact my first appointment with him would be.

Within five minutes of meeting me, Dr. Simckes told me that I had PCOS. He hadn't done any tests or exams. He just listened. I told him about my history of long cycles which turned into no cycles, weight gain, and other symptoms. He told me what he would see on an ultrasound--ovaries covered in a "ring of pearls" or cysts. Sure enough, a little while later when he did an ultrasound, there was the ring of pearls. I cried. I was devastated. I always wanted to be a mom and suddenly, it seemed like it might never happen. Bloodwork confirmed what Dr. Simckes already knew and we decided to take a few months to think about a course of action.

A few months later, November 1999, Eric and I were in Dr. Simckes' office and I asked him for Clomid. He told me, you need Metformin. I said, no I just want to get pregnant, give me Clomid. Got the Clomid and nothing. I didn't even ovulate. Another month of Clomid left me with a large cyst on one of my ovaries and we had to wait for it to go away. I finally agreed to start Metformin while we waited. In March 2000, the cyst was gone and I started another month of Clomid. Imagine my surprise that month when I noticed my temperature chart actually show a spike instead of a flat line. I finally ovulated. Or, at least, we suspected I had because as Dr. Simckes would say, the only way to confirm ovulation is to get pregnant. I wasn't pregnant that month, or the next. But in May, as I said above, I finally saw that second magical line on the EPT.

Six months later, I was pregnant again. I hadn't even used Clomid. I ovulated on Metformin alone. Thirty six long weeks later (full of anxiety for both Dr. Simckes and me--I'm pretty sure I drove him nuts), my beautiful boy was born. I will never forget the moment Dr. Simckes held up my first born for me to see.

Here we are now, almost ten years later. That beautiful first born son of mine turns TEN on July 19. Three little sisters, a devastating loss, and hope--ten years of parenting wrapped up in four little faces, three I see every day and one I only see in my dreams, and two tiny angels that were barely a whisper before they were gone. I will never forget the journey that brought me to where I am now. How could I? For better or for worse, this is the life I was meant to live.


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Saturday, June 11, 2011

A new project

Last week, there were a lot of birthdays, angelversaries, and other important dates in the baby loss community. It hit me as I remembered the sweet angel babies of my friends that there is rarely a day that goes by that I'm not remembering someone's precious baby with them. These babies have impacted my life, their moms have impacted my life. I won't even begin to list them because it would be such a long list. It makes me so sad to think of all the little lives lost before they even began.

This realization got the wheels in my head turning. Yes, our babies died. But, they also lived. I know how important it is to me that people realize that Sydney lived. Twenty weeks inside of me and two hours outside. That life deserves to be remembered and celebrated. So do the lives of all the other angel babies I know.

I want to honor our babies. I want to create a place where we can commemorate their lives. I want to create a visual reminder that THEY WERE HERE.

This idea has evolved into a new blog called The Butterfly Effect. What is the butterfly effect? It's the idea that a small event, such as the flapping of a butterfly's wings, can lead to a much bigger event. The blog will be a 365 type of blog and on each day, it will highlight the life of an angel baby (or babies). Submissions can be anything--a memory, a story, a picture--with one requirement--the submission must celebrate the baby's life. What that is, is up to you. You can also pick the day that has the most meaning to you--birthday, angelversary, due date, the day you found out you were pregnant. I would like to launch this site on June 26, the second anniversary of my Sydney's due date.

If you'd like to make a submission, email me at butterflyeffect365@gmail.com. Please include the following information:

Your name
Baby's name
Your blog/website address (optional)
Important date
Significance of the date (birthday, due date, etc)
Picture or story for your post
Any information you would like to share (birth stats, family members, location, etc)
Message to your baby

If I find that I need any other information, I will contact you. This project is still evolving, so I might find that I need more information to give your baby the best post I can.

Feedback is also appreciated. :)

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Monday, June 6, 2011

Right Where I Am: 2 years, 3 months, 27 days

It has been 2 years, 3 months, and 27 days since February 10, 2009. Such a short time, yet such a very, very long time.

When I think about where I am in my grief, this quote stands out to me:
"Your absence has gone through me
Like thread through a needle
Everything I do is stitched with its color."
~W.S. Merwin

Today, I am still missing Sydney. I will always miss her. There isn't a day that goes by that I don't think of her every moment. She is a part of my life every moment of everyday. She has taught me to be a better mother and wife, to be more compassionate, and to appreciate the little things more.

There are so many times when it still hits me like a ton of bricks. She's gone. Dead. Forever. I won't see her sweet little face, kiss her cheeks, or smell her skin this side of Heaven. I never got to see her open her eyes. The weight of my grief can still bring me to my knees. The physical pain of Sydney's absence isn't as strong anymore, since her sister is here and fills my arms. There are still moments that I crave her and would give anything just to see her.

She would be 2 years, 3 months, and 27 days old. I'm a mother to older children, so I know what she would be doing right now. Toddling around and getting into everything. I wish I knew what she looked like right now. A few days ago, I was going through her pictures and noticed that Kelsey resembles Sydney a lot. I wish I knew what color her eyes would've been and if her hair would've been straight or curly. I saw a picture in a book that made me think of her. I think it is similar to what she would've looked like as a young child.

My sweet Kelsey has eased my grief in many ways. She's an amazing baby. She can never replace Sydney--nor would I want her to--but her birth gave me hope and a certain healing that I couldn't have achieved otherwise. I've said it before, I truly believe that my girls' lives are completely intertwined. I know that Sydney comes to play with Kelsey. When Kelsey was in the NICU, I felt Sydney's presence so strongly when I was at the hospital.

Two years, three months, and 27 days ago, I didn't think I could live through the pain of losing Sydney. It was debilitating. Every moment of the day, my heart cried out for her. I don't think it gets better. I think you just learn to cope with it. You learn how to live with a broken heart. And for me, I've made it a large part of my life to honor her life. I want people to remember that she LIVED. She made an impact on this world. Her life was so much greater than the 2 hours her heart beat on Earth. I can look back now and see the blessings that we were given with Sydney. I am so lucky that I had 2 amazing precious hours with Sydney. She knew only love for her entire life. At 20 weeks, they told us she most likely wouldn't live through labor and delivery. And if she did, we'd only have a few minutes before she passed away. We got TWO HOURS. I wish it had been so many more, but if she had to die, I have no regrets about how she did. She knew she was loved. She knew our touch, our voices, and the warmth of my chest. After having a preemie before, I knew the importance of skin to skin contact and that's where she stayed--on my bare chest, hearing my heartbeat just as she had for the 20 weeks she was inside of me.

I can talk about Sydney now without crying. Not all the time, but most of the time. I want to help others. I want her life to continue to have meaning and impact others. I want her to continue to live on--through her brother and sisters, through her daddy, and through me.

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